Медина Хайбрахманова, 2009 г.р.

Основная часть: 

Диагноз: спинальная амиотрофия Вердника-Гофмана 


Скоро будет уже два года как Медина Хайбрахманова живет дома со своими родными.
Напомним, что Мединочка с 4-х месяцев и почти до двух лет жила в реанимации на аппарате искусственной вентиляции легких.

Осенью 2011 года благодаря общим усилиям наших друзей-благотворителей мы приобрели для Медины аппарат ИВЛ, после чего девочка смогла переехать из больницы домой.

«Теперь Медина не боится, что мама и папа уйдут, если закончился час приема в больнице, не боится спать, зная, что никто не будет мешать плачем и криками, ведь она лежала в общей палате со всеми больными детишками, собирая различные инфекции», - рассказывает мама Медины.
«Сейчас наша дочка чувствует себя хорошо, у нее своя комната, свои игрушки и главное - родные домашние стены. Хоть наша  девочка и не разговаривает, мы ее прекрасно понимаем. Медина очень любит, когда с ней занимаются: читают книги, рисуют, поют и просто, когда с ней находятся рядом. Дома она окружена любовью! Мы ещё раз благодарим всех людей, которые помогли воплотить нашу мечту в реальность, купив нам всё медицинское оборудование для нашего сокровища – Мединульки».

Большие денежные затраты для семьи Хайбрахмановых  не заканчиваются и по сей день. Медине периодически требуется новое оборудование и постоянно требуется специализированное питание. У родителей на всё не хватает средств.

Стоимость питания «Нутрини» на три месяца для Медины составляет 54 700 рублей.

Друзья, давайте вновь протянем руку помощи нашей малышке Медине!

 

Источник:   nashideti.org/programs/peoples1.php?ELEMENT_ID=388

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